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‘If Flynn lives to see his first birthday, we’ll be lucky’

Little Flynn McLeod was diagnosed with Ohtahara syndrome when he was just ten days old. His parents, Lia and Jason, have been told not to expect he'll reach his first birthday.

Little Flynn McLeod was diagnosed with Ohtahara syndrome when he was just ten days old. His parents, Lia and Jason, have been told not to expect he'll reach his first birthday.

A Rothesay mum whose son has been diagnosed with a rare form of infant epilepsy has told The Buteman why her family are backing a fund-raising campaign for the Children’s Hospice Association Scotland.

When their baby boy Flynn was just ten days old, Lia McLeod and her husband Jason were told he had Ohtahara syndrome, which causes him to suffer several hundred seizures every day, each one damaging his brain a little more.

But Lia told The Buteman that despite everything the family has gone through, they still feel lucky in some ways.

“He hardly ever cries,” she said. “He takes his medicine without making faces. He’s never been any trouble whatsoever.

“He almost smiled today for the first time. He had this funny little half-cocked grin. He can hear, and we think he can see.

“But he’s suffered so much brain damage that he can’t develop. He’ll never be able to crawl, or do anything other babies can. If he lives to see his first birthday, we’ll be lucky.”

* To read this story in full, pick up your copy of the new issue of The Buteman - on sale from Thursday, February 14.

 

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