Bute couple’s charity mission as daughter is born with rare illness

Jordan Lyon and Jody Anderson with their son Kyle and baby daughter Cassey.
Jordan Lyon and Jody Anderson with their son Kyle and baby daughter Cassey.

A young Bute couple have launched an appeal for a children’s charity after their baby daughter was diagnosed with a rare medical condition.

Jody Anderson and Jordan Lyon, whose daughter Cassey was born two weeks early on July 20, have been staying at Ronald McDonald House while Cassey receives treatment at the nearby Yorkhill Children’s Hospital for what doctors believe is Johanson–Blizzard syndrome.

The couple have created a ‘Cassey’s Challenge’ page on Facebook to tell the story of their daughter’s fight, and have also set up a JustGiving page for Ronald McDonald House after Jody took part in a zip-line challenge on August 17 to raise money for the charity.

Johansen-Blizzard syndrome is a rare congenital disorder which affects development of the pancreas, nose and scalp and can result in hearing and learning problems, thyroid and digestive difficulties and impaired growth.

Ronald McDonald House is an independent charity providing free accommodation for more than six hundred families each year whose children are critically ill patients in Yorkhill Hospital.